Hearing you have CLL can be overwhelming, upsetting and hard to understand.
It is important you know that:
There is hope
This type of blood cancer may not require treatment right away; when it is needed, treatment can lead to remission.
Research is advancing
Treatments are more effective today compared to 30 years ago.
It’s nothing you did
You did not catch the disease from someone else and cannot pass it to your children.
You are not alone.
Know that the blood cancer community is here to support you every step of the way.
What happens next?
Banner Image
Talking to family and friends
Banner Image
Telling your children
Banner Image
Speaking with your employer
Banner Image
Preparing for appointments
Banner Image
Understanding lab results
Banner Image
Asking for a second opinion
Banner Image
Coping with fear, anxiety and stress
Banner Image
Taking care of your body
Banner Image
Managing fatigue and cognitive challenges
Banner Image
Understanding insurance and organizing finances
Experiences of others with CLL
Resources on CLL
Chronic Lymphocytic Leukemia
Learn about CLL, how it is diagnosed, an overview of treatments and what happens next.
Chronic Lymphocytic Leukemia (CLL) Treatment Discussion Guide
Beyond active surveillance (the ‘watch and wait approach’) there are several CLL treatments to consider. Each treatment has different features and side effects. It is important to be comfortable with the CLL treatment you choose.
Types of blood cancer treatments
You or your loved one has been diagnosed with a type of blood cancer. Cancer treatment can be complex, with different types of treatment options available for some blood cancers. What are they and how do they work? This fact sheet will help you Learn about the different treatment options available, Understand each type of treatment and how it can help, Prepa…
Watch & Wait (active surveillance)
Learn about the watch and wait approach, understand the benefits and find out what it means for you.
Understanding Genetics
Genetics plays an important role in understanding cancer and treatments for cancers. What is genetics and how is it involved in cancer?
Shared Decision Making: Discussion tool for people with a blood cancer
You or your loved one has been diagnosed with a type of blood cancer. You will be making important decisions with your healthcare team.
CLL with Dr Kuruvilla
Dr. Philip Kuruvilla talks to us about current chronic lymphocytic leukemia (CLL) treatment options, potential side effects and how to manage them.
Managing Long Term Side Effects with Amy Pulsifer
Amy Pulsifer talks about her experience managing long term effects due to her Chronic Lymphocytic Leukemia (CLL).
Understanding CLL
Short animated video describing the chronic Lymphocytic Leukemia (CLL)
Treatment Options for Chronic Lymphocytic Leukemia
A short video describing treatment options for CLL
Active surveillance of Chronic lymphocytic leukemia (CLL)
Short animated video about the active surveillance approach (watch and wait) to help you understand the benefits and find out what it means for you.
Chronic lymphocytic leukemia (CLL): Advances in research & treatment
Chronic lymphocytic leukemia (CLL) is the most common type of leukemia in adults and can vary from person to person. This is why a one-size-fits-all treatment approach is not optimal. Research advances in how we treat CLL are discussed by Dr. Anthea Peters, Hematologist at the Cross Cancer Institute in Edmonton, and Associate Professor, Department of Oncolog…
Chronic lymphocytic leukemia (CLL) and your genes
When you are first diagnosed with chronic lymphocytic leukemia (CLL), you may have genetic tests on your leukemia cells. Doctors uses tests such as fluorescent in-situ hybridization (FISH) and DNA sequencing to look for changes in chromosomes and genes, such as whether part of a chromosome is missing or deleted, or mutations.
These genetic tests help doctor…
All resources
Get the information you need, in the format that works for you - from symptoms and side effects to treatment options and next steps.
About your subtype
Doctors classify chronic lymphocytic leukemia (CLL) into subtypes by using various tests. The subtype plays a large part in deciding the type of treatment.
Nodular
Interstitial
Mixed
Diffuse