Your medical appointments are the best times to speak with members of the healthcare team.
How you can take an active role in your care
Learning about your cancer will help you make informed decisions with your doctor about your cancer treatment. When you take an active role in your ongoing care, you are better able to cope once you begin treatment and can look forward to the prospect of recovery.
Be an information seeker. Learn about your diagnosis and the most current treatment.
Keep all appointments with the doctor and be sure to talk openly about any fears, concerns or side effects you have.
Contact your doctor about tiredness, fever, pain or difficulty sleeping so that any problems can be addressed early.
Get medical advice if you have changes in mood, feelings of sadness or depression that persist. Depression is an illness that should be treated.
Talk to family and friends about how you feel and how they can help.
Helpful tips
Watch and keep track of signs and symptoms of side effects.
Keep a list of all your medications and supplements
Go to appointments with questions you’ve prepared in advance.
Take notes during the appointment.
Organize and keep medical records.
The outlook is continuing to improve
Remember that the outlook for people with a blood cancer is continuing to improve and new treatments are on the horizon. Researchers are studying new blood cancer treatments in clinical trials for people of all ages and in all treatment stages.
Understanding clinical trials
You are not alone
Worksheets to manage your cancer care
It can take a lot of effort to stay organized and on top of everything you need to know. We’ve created easy-to-follow worksheets that will help to keep you organized and ultimately save you some time.