Hearing you have ET can be overwhelming, upsetting and hard to understand.
It is important you know that:
There is hope
Most people with this disease can expect a normal or near normal life expectancy.
Research is advancing
Our understanding of this disease has progressed in recent years.
It’s nothing you did
You did not catch the disease from someone else and cannot pass it to your children.
You are not alone.
Know that the blood cancer community is here to support you every step of the way.
What happens next?
Telling others you have ET
Talking to family and friends
Telling your children
Speaking with your employer
Taking charge of your care
Preparing for appointments
Understanding lab results
Asking for a second opinion
Managing your new reality
Coping with fear, anxiety and stress
Taking care of your body
Managing fatigue and cognitive challenges
Understanding insurance and organizing finances
Experiences of others with essential thrombocythemia
Resources on ET
Read
Download fact sheets, guides and other resources to learn everything from the disease symptoms, statistics and treatment options.
Essential Thrombocythemia
Learn about ET and how it is diagnosed, monitored and managed. Learn about a related disease (smoldering multiple myeloma).
Understanding clinical trials
Get an overview of clinical trials, understand them, how they are planned, evaluate benefits and risks of participating, address concerns and what to as…
Types of blood cancer treatments
You or your loved one has been diagnosed with a type of blood cancer. Cancer treatment can be complex, with different types of treatment options availab…
Understanding Genetics
Genetics plays an important role in understanding cancer and treatments for cancers. What is genetics and how is it involved in cancer?
Shared Decision Making: Discussion tool for people with a blood cancer
You or your loved one has been diagnosed with a type of blood cancer. You will be making important decisions with your healthcare team.
All resources
Access all fact sheets, guides, podcast, videos and other resources to learn everything from disease symptoms, statistics and treatment options.