Hearing you have mantle cell lymphoma can be overwhelming, upsetting and hard to understand.
It is important you know that:
There is hope
This type of blood cancer may not require treatment right away; when it is needed, treatment options are available.
Research is advancing
Our understanding of this disease has progressed tremendously in recent years.
It’s nothing you did
You did not catch the disease from someone else and cannot pass it to your children.
You are not alone.
Know that the blood cancer community is here to support you every step of the way.
What happens next?
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Talking to family and friends
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Telling your children
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Speaking with your employer
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Preparing for appointments
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Understanding lab results
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Asking for a second opinion
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Coping with fear, anxiety and stress
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Taking care of your body
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Managing fatigue and cognitive challenges
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Understanding insurance and organizing finances
Resources on waldenstrom macroglobulinemia
Lymphoplasmacytic Lymphoma (LPL) and Waldenstrom Macroglobulinemia (WM)
Lymphoplasmacytic lymphoma (LPL) and its related condition, Waldenström macroglobulinemia (WM), are slow-growing subtypes of non-Hodgkin lymphoma.
Immunotherapy
Learn about your immune system, understand immunotherapy and how it works.
Blood and Marrow Stem Cell Transplant
Get an overview of what your blood and bone marrow do; understand the different types of stem cell transplants; learn who is eligible for a stem cell transplant; find out how to prepare for a stem cell transplant; learn about recovery.
Understanding clinical trials
Get an overview of clinical trials, understand them, how they are planned, evaluate benefits and risks of participating, address concerns and what to ask.
Types of blood cancer treatments
You or your loved one has been diagnosed with a type of blood cancer. Cancer treatment can be complex, with different types of treatment options available for some blood cancers. What are they and how do they work? This fact sheet will help you Learn about the different treatment options available, Understand each type of treatment and how it can help, Prepa…
Ron Ternoway learns and lives with Waldenstrom macroglobulinemia
When Ron Ternoway was diagnosed with a rare blood cancer called Waldenstrom macroglobulinemia (WM), he tracked down as much information as he could so he could be, as he describes it, a full partner is his treatment.