Hearing you have Cutaneous T-cell lymphoma can be overwhelming, upsetting and hard to understand.
It is important you know that:
There is hope
Treatments for this rare type of blood cancer can lead to remission.
Research is advancing
Our understanding of this disease has progressed tremendously in recent years.
It’s nothing you did
You did not catch the disease from someone else and cannot pass it to your children.
You are not alone!
Know that the blood cancer community is here to support you every step of the way.
What happens next?
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Talking to family and friends
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Telling your children
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Speaking with your employer
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Preparing for appointments
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Understanding lab results
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Asking for a second opinion
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Coping with fear, anxiety and stress
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Taking care of your body
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Managing fatigue and cognitive challenges
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Understanding insurance and organizing finances
Resources on Cutaneous T-cell lymphoma
Cutaneous T-cell Lymphoma (CTCL)
Cutaneous T-cell lymphoma (CTCL) is a slow-growing (indolent) subtype of non-Hodgkin lymphoma (NHL). CTCL is rare, representing 4% of NHL cases. It starts in white blood cells (lymphocytes) that reside in the skin, called T-cells.
Types of Blood Cancer Treatments
You or your loved one has been diagnosed with a type of blood cancer. Cancer treatment can be complex, with different types of treatment options available for some blood cancers. What are they and how do they work? This fact sheet will help you Learn about the different treatment options available, Understand each type of treatment and how it can help, Prepa…
Understanding Genetics
Genetics plays an important role in understanding cancer and treatments for cancers. What is genetics and how is it involved in cancer?
Shared Decision Making: Discussion Tool for People With a Blood Cancer
You or your loved one has been diagnosed with a type of blood cancer. You will be making important decisions with your healthcare team.
Molecular Profiling for cancer
Learn about molecular profiling, get to know the benefits, understand how it works and what it means for you.
Understanding Cutaneous T-cell Lymphoma (CTCL)
This animated video helps you understand CTCL
All resources
Get the information you need, in the format that works for you - from symptoms and side effects to treatment options and next steps.